I asked a group of hydrocephalus warriors what it`s like for them to continue living on their own – physically, emotionally and financially.
I am grateful for the new friends I`ve met online that has helped me out emotionally through the breakthrough post-operation recovery.
“It takes about a year to recover completely physically.”, Joseph Rose
” I don`t know either. I wonder how people go on to living on their own- in their apartments or houses. ⌈ It seems a bit timely to move from brain surgery to full time work⌉ , I reply.
Some people responded to my poll as not realizing that they were struggling emotionally. To my belief, when you are busy trying to recover then maintain a full-time job- you start to distract yourself.
Other responses were ” Physically it took about 2 months – i was in the hospital for 2 weeks. Emotionally – didn’t really notice, i just focused on getting back to work. Financially it’s taken about a year so far. The surgery was last July.
“It’s a challenge as I had to move into my parents place when my hydro took a decline but I still pay all the bills for my apartment as well with no job”, another hydrowarrior responded. “
It is something least talked about post-surgery. Along my recovery- I hope that I could get in a comfortable place in my life on my own again without living with a ‘boyfriend’ or my parents again. I`m a senior in college now so I am working towards this model campaign for hydrocephalus/writing/and healthcare field to take off somehow.