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“Doctor`s Said I`ll Never Walk or Talk”: Carlos Rene Reyes Hydrocephalus Survivor

After my shunt revision on April 3 , 2018 and talking to other shunt survivors to gather information on how to survive the daily symptoms and spread awareness on the effects of hydrocephalus-.I have concurred data on how people have overcame this disease.

Two days ago I interviewed with hydrocephalus survivor : Carlos Rene Reyes.

Me:  Like how long have you had hydro and is your shunt programmable? Also how does it make you feel and how have you managed to endure it?

Carlos: 

“I’ve had hydrocephalus since birth. Was a premature baby. Two month preme. Weighed 6 pounds 6 oz but once the fluid was drained I weighed 3 pounds 2 ounces. My last shunt revision was over 10 years ago. I think I endure the pain pretty much like everyone does, vomiting and severe headaches and lethargy.
Doctors said I’d never walk or talk
I’d either die or be a vegetable”
Me: 

I see. Thanks so much! I will definitely share your story
They told me I was learning disabled(too)
Carlos:

I also have cerebral palsy due to a stroke I had at birth
I love this group!
It’s awesome to see there’s so many people that go through what I go through
Carlos studied social work at the University of Texas -Pan American and is from McAllen, Texas.
There are more interviews to come lovelies.
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I’m Plath’s Zombie

I know I didn’t mean much to you,

It’s okay,

Many wigs for many feelings here

Like there’s many styles for many of you liars out there,

You fake it like a jackal every Valentines day,

Act cumbersome to make me feel complete,

I wrote many poems about you gods, false gods with your reprisals,

Your love making was sinister

It’s only been three years since the last time I felt alive

All the drinking – trying to find my father at the end of the glass- Sylvia Plath was my twin – every night- I didn’t charge them money – just conversation –

someone to get me in in the mist and out of my head

All of the hands that wrapped around my neck,

That took an innocence for something to laugh at,

Now- I’m stronger than that

You didn’t dismiss me- you lost a goddess,

But you gods wear the same face-in spirit – talking to you turned my cross- you took me away from my fulfillment

To be honest, I never gave a shit about you,

Screw Valentine’s day,

And it’s dog year amore

#literature · #prose · #published · #writing · breakup · confessional · culture · Feminism · Love

WTF IS DATING???

Sex rules everything and chivalry is looking pretty dead nowadays. If we really want to get to know what dating is, let`s ask God.

In the Bible it pretty much concludes that either your`e married or single in order to be on the safe side with God without practicing premarital sex. So who invented dating? What does that mean to women? Men?

According to Larry Getlen; author of the article called “The Fascinating History of How Courtship Became Dating”  dating is’ The word “date” was coined — inadvertently, it seems — by George Ade, a columnist for the Chicago Record, in 1896. In a column about “working class lives,” he told of a clerk named Artie whose girlfriend was losing interest in him and beginning to see other men socially. When Artie confronts his fading love, he says, “I s’pose the other boy’s fillin’ all my dates?”’ https://nypost.com/2016/05/15/the-fascinating-history-of-how-courtship-became-dating/

So is Ade the blame for all of this confusion? Maybe and maybe not. Some of us know the story of how our grandparents met  and the stories are usually centered around them meeting in a grocery store, at a job, or even on the street. Back in the day there was courtship. Nowadays courtship is “Netflix and chill”, “Let me slide in her DMs”, “Do you want to come over?” etc.

From my experience, its hard to get to know someone without there being an ulterior motive; even though I`m straight with them in the beginning when it comes to explaining exactly what I`m looking for.Dating on and off for only five years seems so long but compared to most women my age. I`m still in the beginning of dating. so dating seems like a game that wastes time. Has anyone else had better experiences?  Please do tell.

 

#literature · #prose · #published · #writing · culture · Love · Poetry · spiritual

Black Girl Magic

There is black girl magic at play when you hold her,

color doesn’t make this so,  but the culture that is lost lives within us,

the carriers of this world,  the originals,

the ageless and the bronze highlights of life

We are temperamental because we are out place,  not ghetto

We are sassy because we were once queens,

not divas

We are disapproved because we feel unresolved and stuck to the side like a piece of gum under a school desk

Our language has been lost yet we still gold on to being “African american” Even the native land doesn’t accept us so how should we see?

I’ve studied every fulcrum of the Earth but I have envisioned a life of uncursed generations before me

For my daughter shouldn’t have to be ashamed of the brown sugar essence of life.