Jill Welch is another hydrocephalus survivor that I’ve had the liberty to speak with during recovery. It’s amazing to see many other hydrocephalus survivors stories.
This is a synopsis of her hydrocephalus story : “I am 35 yrs old and was diagnosed with hydrocephalus after a closed head injury at 17. I have congenital aqueductal stenosis but never had headaches until after the head injury. It took nearly 4 yrs til I had an ETV. That worked for 2 years but unfortunately scar tissue built up causing the need for a shunt. I’ve had the Codman Hakim programmable shunt for 12 years now. I have only had 2 revisions once to the stomach tube and lately to replace the tube and valve.”
Jill had a shunt revision four weeks ago in April 2018.
I know a little bit about scar tissue build up. Not saying that everyone with a concussion will get hydrocephalus. There are so many unanswered questions about hydrocephalus! Hence, I’ve had it since birth so there’s no telling.
Jill is also a member of the Hydrocephalus Association as well I am. Hydrocephalus survivors must stick together!