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“Doctor`s Said I`ll Never Walk or Talk”: Carlos Rene Reyes Hydrocephalus Survivor

After my shunt revision on April 3 , 2018 and talking to other shunt survivors to gather information on how to survive the daily symptoms and spread awareness on the effects of hydrocephalus-.I have concurred data on how people have overcame this disease.

Two days ago I interviewed with hydrocephalus survivor : Carlos Rene Reyes.

Me:  Like how long have you had hydro and is your shunt programmable? Also how does it make you feel and how have you managed to endure it?

Carlos: 

“I’ve had hydrocephalus since birth. Was a premature baby. Two month preme. Weighed 6 pounds 6 oz but once the fluid was drained I weighed 3 pounds 2 ounces. My last shunt revision was over 10 years ago. I think I endure the pain pretty much like everyone does, vomiting and severe headaches and lethargy.
Doctors said I’d never walk or talk
I’d either die or be a vegetable”
Me: 

I see. Thanks so much! I will definitely share your story
They told me I was learning disabled(too)
Carlos:

I also have cerebral palsy due to a stroke I had at birth
I love this group!
It’s awesome to see there’s so many people that go through what I go through
Carlos studied social work at the University of Texas -Pan American and is from McAllen, Texas.
There are more interviews to come lovelies.
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19 thoughts on ““Doctor`s Said I`ll Never Walk or Talk”: Carlos Rene Reyes Hydrocephalus Survivor

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