What is Hydrocephalus?
Hydrocephalus is a brain condition that is technically described as fluid building in the brain causing the head to swell up and cause permanent brain damage. There are several global associations dedicated to providing information on neurosurgeons, neurologists,health and shunt installment options and sponsors not willing to give up on this disease. Studies show that there isn`t any correlation between genetics and the disease. I was diagnosed with Hydrocephalus when I was an infant and have had a Ventriculo Peritoneal shunt ( it connects from the back of the right side if my head to my abdominal cavity) all of my life that drains CSF into my abdomen.
- Ventriculo-atrial is Cerebral Spinal Fluid( CSF) being drained into the heart
- Ventriculo- Pleural is a shunt surgically implicated into a ventricle and connected to the pleural cavity
- Lumbo-peritoneal is located starting fro the lumbar spine to drained into the peritoneal cavity.
There are several community networks local and online that you could advocate with and join WALKS to meet others that live with hydrocephalus. There is a picnic every summer in Missouri that gathers loving people into fellowship and great food.
The Hydrocephalus Association updates their website 2-3 times a month on campaigns, education about Hydrocephalus and what new sponsors have joined the movement.